For the 2025–2028 funding period, SAMS will be responsible for the mandate of SPHN’s Data Coordination Center (DCC) and will continue its successful collaboration with the SIB Swiss Institute of Bioinformatics. The federal government plans to support the DCC with CHF 20.7 million over the next four years. In the future, the network partners will also be increasingly involved financially. This will broadly support the transition from a national funding initiative to an integral part of the data infrastructure. More information on the future of SPHN can be found in our newsletter.

In the past years, Dr. Chiarugi led different groups in the domain of data-driven research, scientific computing, and data management in the context of prestigious institutions such as the Max Planck Society and the University of Cambridge (UK). In his new role, Dr. Davide Chiarugi will oversee the part of the SPHN Data Coordination Center (DCC) that is hosted by the SIB Swiss Institute of Bioinformatics in Basel. The general management of the SPHN DCC is under the responsibility of Thomas Geiger. More information can be found on the SPHN website.

The guidance particularly addresses challenges regarding autonomous decision-making and the responsible communication of genetic findings, privacy protection and data access conditions for genomic data. It also emphasizes the importance of active participation of patients and citizens in genomic research. The guidance aims to promote a harmonized national approach to genomic data governance, enabling both national and international collaboration. By adopting these recommendations, stakeholders can help establish a trustworthy framework for genomic research.